http://www.progeriaresearch.org/interview_with_john_tacket.html
This link will take you to the Progeria Research Foundation page where they conducted a written interview with John. When asked if there was anything John would like other kids to know about children with Progeria he states that,
"We're no different; we do the same things other kids do. Don't be afraid to talk to us."
Just as other people don't like to be stared at, kids with Progeria don't like it either.
This is a great source to relate to, as well as the other videos on this website if you or your child is dealing with too much negative attention.
Tuesday, December 13, 2011
Sunday, December 11, 2011
Compilation of Children with Progeria and Specializes on Leon Botha
Leon Botha was one of the longest known survivors of Progeria; he died one day after his 26th birthday. This is twice the average lifespan of a person with Progeria. Botha was an extremely talented artist as well as a musical performer.
Thursday, December 8, 2011
Hayley's Page
Hayley Okines is one of the children in the world diagnosed with Progeria. Her webpage ( http://hayleyspage.com ) has a lot of additional information on how Hayley's family copes with Progeria and how it affects Hayley and their family.